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My womb cancer story by S.H

22/9/2019

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I’m a trans masculine non-binary lesbian and was diagnosed with womb cancer last year at age 37.
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I always had problems with my periods being heavy and painful. I was diagnosed with PCOS and endometriosis. I struggled to get doctors to do anything about it as I had no interest in having children.

My periods got even worse than usual and my doctor prescribed txa. It all finally came to a head in December 2017 when I collapsed through blood loss and had to go to A&E. That triggered them looking into the problem but meant a series of tests which I found very difficult to deal with given my gender dysmorphia.

They gave me a smear test, an internal and external ultrasound and they attempted a hysteroscopy but I couldn’t cope with that so I needed to have a second attempt under general anaesthetic. They told me they’d take a biopsy while they were having a look “just to be on the safe side”.

Getting a call from the hospital saying I needed to attend an appointment first thing the following morning. It wasn’t exactly a surprise when they told me I had cancer. The consultant was careful to explain that treatment would mean I would be unable to have children. They seemed surprised when it didn’t appear to bother me but carrying a child had never been something I wanted to do. I am the youngest person they have ever treated.

I was lucky. It was caught early. I was stage 1a and all I needed was a hysterectomy with no further treatment. I live alone several hundred miles away from family and as I was unable to care for myself, my mother looked after me for ten weeks. I’m not out to her and stifling that part of myself for so long was painful. I became very passive.

The medical team don’t seem clued up on how to deal with someone in my situation. I still need regular checkups with my consultant and they involve an internal examination. When I expressed that I found anything to do with penetration difficult, they actually said “don’t you use toys?” Not those types I don’t.

I tend to present at my most feminine at my checkups. I’m surrounded by women in the waiting area and feel uncomfortable presenting masculine in what is a very female space.

I think more could be done in gynaecology for those who are LGBT+. Everyone’s experience is different but not treating us as stereotypes would help
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September is Womb Cancer Awareness Month

1/9/2019

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​Well, here we are again. September has arrived and that means just one thing - it’s womb cancer awareness month.
We will be spending the next month talking all things womb cancer related and trying to raise as much awareness as we can.
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Sadly, as a tiny organisation with no advertising budget or paid staff or media contacts or celebrity followers we don’t get seen or heard in the mainstream media but that doesn’t stop us shouting from the roof tops and making a lot of “social media” noise
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I am passionate about raising awareness of womb cancer. The fact that it is the most common gynaecological cancer yet gets very little attention baffles me.
Why do not more women know about it? How many of them are at risk of getting diagnosed yet are unaware of it? How many already have the typical symptoms but don’t realise that they may already have it?
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Go into any GP surgery waiting room in the UK and I bet you won’t find any information on womb cancer – unless one of my lovely #PeachSisters has left some of our awareness leaflets there.
​Do you know that almost 15,000 of them have gone out around the country in the past 8 years?  Not only are they in GP waiting rooms but also in libraries, gyms, café’s – even the ladies loo in a nightclub.


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Womb cancer needs more attention & we will continue to shout about it for as long as we need to because it is a cancer that can affect women of all shapes & sizes. All women need to know about it and know about the risk factors and the signs and symptoms to be aware of.

So I hope that you will do your bit this September & help   #GiveWombCancerAVoice.


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    Blog posts about life with womb cancer; by me and other womb cancer fighters and survivors. Plus occasional guest blog posts on relevant subjects.

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