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Day out with CRUK

25/3/2015

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This is a blog post by a very good friend, and Womb Cancer Ambassador, Margaret Chandler.

"As a result of somebody from CRUK viewing my CancerStories video, I was invited to the Cancer Research Centre at Leicester University on March 13th 2015 during a visit by Leicester West MP Liz Kendall.
We heard from two top scientists at the centre, Prof Bayliss and Prof Fry, who felt the way forward with cancer was to raise awareness and improve its early detection. Prof Bayliss also explained about Targeted Therapy which he is developing in Leicester. This aims to target tumours directly,whilst leaving healthy tissues and cells  undamaged,unlike conventional chemotherapy/radiotherapy at present. 
I was asked to tell my story, in which I explained about my emotional/psychological struggle with my cancer diagnosis and treatment. I felt it is not enough to remove cancer and feel the job is done. With more people set to be diagnosed with cancer, it is essential that their mental health and wellbeing is considered if people are to lead valuable and meaningful lives once treatment has finished.
I also had the opportunity to raise awareness of womb cancer by explaining the symptoms to look out for. Liz Kendall felt the training of GP's needed to be improved so that they were no longer of the belief that womb cancer was a disease of post-menopausal women.
I have since been informed that the Profs at the Research Centre are now working more closely with the Psychology Dept following the points I raised. 
Liz Kendall's assistant thanked me for raising awareness and confided that she was experiencing gynae problems and was now going to get herself checked out. 
Overall I found it a powerful experience. It was interesting to find out about the scientific work being undertaken,but as a patient I hope my experience can lead to an improvement in the psychological outcome for future cancer patients."


Many thanks to Margaret for sharing details of her informative trip to the Cancer Research Centre at Leicester University.

If you would like to write a guest piece for the blog then please email me at wcsuk@hotmail.co.uk.

xx Kaz xx
 
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Time to start shouting!

11/3/2015

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Back in Nov 2014 I emailed the Dept. of Health to ask if they had any intention of running a womb cancer awareness campaign. The reply was that the "Be Clear on Cancer" campaign is run by Public Health England  and that there are no current plans to run a womb cancer awareness campaign as part of Be Clear on Cancer.
They said "
Be Clear on Cancer targets cancers where there is evidence that the symptoms are not widely known and where raising awareness of these is likely to increase rates of early diagnosis"
Knowing that many of the women who come to us had never heard of womb before being diagnosed I would say that the symptoms are not widely known and therefore there needs to be an awareness campaign.
So WCSUK is asking you to email your MP as soon as you can. The General Election is around 2 months away and we need to start making some noise if we are to get womb cancer taken seriously.
You can find our who your MP is and their contact details here http://www.parliament.uk/mps-lords-and-offices/mps/
I am sick and tired of struggling to get the word out about womb cancer. It sometimes feels like I am banging my head against a brick wall and no one is taking any notice.
Ask your MP to ask Public Health England and the Dept. of Health why they are not giving womb cancer the same kind of attention as ovarian or cervical.  Tell them that more women are diagnosed with womb cancer than ovarian or cervical. Tell them that you go through the same kind of treatment as those women yet we are overlooked time and again. It's almost as if womb cancer patients don't exist.
There are over 70.000 of us living with womb cancer in UK and it's time our voices were heard.
Please help raise awareness of womb cancer.

xx Kaz xx
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    Blog posts about life with womb cancer; by me and other womb cancer fighters and survivors. Plus occasional guest blog posts on relevant subjects.

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