I spent most of the holidays searching the internet for information and found a few good sites like Cancer Research UK and Macmillan but what I really wanted was support from other women that had gone through what I was going through and I couldn't seem to find it!
I had my hysterectomy; I was told at the time that I would probably not need any further treatment but unfortunately when the pathology results came back it showed that I would and so I then had chemotherapy and radiotherapy. My treatment finally ended on 12th July 2010.
What then? Try and get back to normal? But what is normal when you've had cancer? Things can never go back to the way they were before I got that phone call.
So after a few months of recuperation, I started to think back to how it had been at the very beginning and remembered how scared and alone I felt. I was sure that there must be other women out there who felt the same so I decided to start an online support group on Facebook. https://www.facebook.com/WombCancerSupportUK
I was right; there were other women out there who felt the way I did! What was even more wonderful was that there were women out there who had gone through it all and were prepared to offer help and advice to those just starting on this long journey! I asked one of them to help out on the main FB page, and this was soon joined by a closed chat group where the women could talk in complete privacy about things.
We now have over 870 women on the main support page (2.297 as of 04/09/16) and there are 117 in the private chat group (147 as of 04/09/16 - this is a second group that was started as the first was subjected to a takeover and is no longer past of WCSUK)
.In an effort to reach out to other women with womb cancer who want support we are on twitter https://twitter.com/#!/WombCancerUK and I shall also be using this blog as well as the main FB page to share links, advice, latest research and other interesting bits of info about womb cancer.
If you know of anyone who needs some support, then please share any of the links above.
Much love, Kaz xx